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The goal of the Disability Policy Collaboration is to impact national public policy for people with developmental disabilities, including those with cerebral palsy and intellectual disability, and their friends, families and loved ones.

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Labor-HHS-Education

UCP Urges Appropriators to Increase Funding

The following letter was sent to Congressmen Ralph Regula and David Obey as well as Senators Arlen Specter and Tom Harkin on behalf of UCP.

May 31, 2001

Senate Appropriations Subcommittee on
Labor- HHS-Education
184 Dirksen Senate Office Building
Washington, DC 20510

Re: FY02 Labor-HHS-Ed Appropriations Priorities

Dear Senator Specter:

UCP, one of the nation's largest non-profit disability organizations, urges you to support the following appropriations levels for programs essential to Americans with disabilities:

  • Social Services Block Grant (SSBG): Social Security Act Title XX
    $2.38 Billion in FY02 ($655 Million increase over FY01), as endorsed by the Social Services Block Grant Coalition of 30 national and regional governmental and charitable groups. Rationale: SSBG appropriations have declined each year from a peak of $2.8 Billion in FY95, requiring widespread cuts in services. Many states have been unable to offset these federal financial losses. Social Services Block Grants fund the following services: adoption, case management, adult day-care, child day-care, education, family planning, adult foster care, child foster care, home-based services, health related services, independent and transitional living services, housing services, home delivered meals, disability services, and residential services.

  • Maternal & Child Health Block Grant (MCHBG): Public Health Service Act Title V
    $850 Million ($141 Million increase over FY01 and equal to FY02 authorization level), as endorsed by the Maternal & Child Health Block Grant Coalition of 11 national groups. Rationale: In inflation-adjusted dollars, MCHBG funding has declined steadily since FY83. MCHBG annually serves 1 million children with disabilities, but many of the other 11 million children with disabilities also could be well served by this program. Maternal and Child Health Block Grants fund the following services: prenatal care, immunizations, school health services and education programs, adolescent health services, lead poisoning prevention services, and specialized health services and family support for children with developmental disabilities or chronic illnesses.

  • Centers for Disease Control (CDC) Birth Defects & Developmental Disabilities Center
    At least $68 Million (same as FY01), including line items of $17.6 Million for generic birth defects projects including cerebral palsy, $15.3 Million for Disability Prevention and $9.5 Million for Fetal Alcohol Syndrome (all the same as FY01). Rationale: Birth defects and developmental disabilities are among the most heartbreaking and costly maladies. Prevention through research and public education is both humanitarian and highly cost-effective.

  • Department of Education Office of Special Education and Rehabilitative Services (OSERS): Two Projects For Children With Disabilities
    $1.5 Million total for two projects by UCP of Alaska/Parents, Inc. for children with disabilities in rural Alaska (detailed in Attachment 1 and Attachment 2 [see links to PDF below]). The first project would provide $1 Million to build on the $450,000 appropriated in FY01 for technology training. The second would provide $500,000 for UCP of Alaska/Parents, Inc. to offer a variety of assistance to parents of children with disabilities. Rationale: Alaska's incidences of cerebral palsy and Fetal Alcohol Syndrome are increasing, particularly among Native Alaskans. Yet rural Alaska's vast distances have resulted in limited services to children with disabilities and their families. These projects would improve services to truly needy people.

  • HHS Health Care Financing Administration RealChoice Grants to States for Home and Community Based Services Infrastructure Development
    $50 Million for these HCFA grants (authorized in December 2000; same appropriations level as FY01). Rationale: The Supreme Court's Olmstead decree requires states to move more people with disabilities from institutions to community settings. But most states lack the community infrastructure of services and facilities to aid these people, so this program makes competitive grants to improve the situation.

  • Centers of Excellence for Cerebral Palsy Research and Prevention Within CDC
    $8.5 Million for a Cerebral Palsy Research and Prevention Center within CDC for six extramural regional centers that would be focal points for epidemiologic, prevention and demonstration research (detailed in Attachment 3 [see link to PDF below]). Rationale: These Centers would focus increased resources on a malady that accounts for $5 Billion annually in healthcare spending.

    Thank you very much for your consideration of these requests. A similar letter was sent to Senator Harkin.

    Sincerely,

    Kirsten A. Nyrop
    Executive Director
    UCP


    Attachments:
    PDFAttachment 3 (280 kb.)
    PDFAttachment 1 (142 kb.)
    PDFAttachment 2 (123 kb.)