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Public Policy

The goal of the Disability Policy Collaboration is to impact national public policy for people with developmental disabilities, including those with cerebral palsy and intellectual disability, and their friends, families and loved ones.

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Resources

Osteogenesis Imperfecta Foundation

    804 W. Diamond Ave, Suite 210
    Gaithersburg, MD 20878
    The words Osteogenesis Imperfecta with OI written underneath, then the word Foundation written underneath. The words are in white on a blue background.

    The Osteogenesis Imperfecta Foundation, Inc. (OI Foundation) is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta. The Foundation's mission is to improve the quality of life for individuals affected by OI through research to find treatments and a cure, education, awareness, and mutual support. The OI Foundation began in 1970 when a small group of parents from around the nation met in Chicago to discuss OI and its problems. At that time, they banded together to stimulate public and professional interest, support families and encourage research. Today, many of the people who serve on the board of directors and oversee the Foundation's operation have OI themselves or are parents of children with OI.
    Phone: 301-947-0083
    Fax: 301-947-0083
    E-Mail: bonelink@oif.org
    URL: http://www.oif.org
    Updated: 09/08/2003