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Public Policy

The goal of the Disability Policy Collaboration is to impact national public policy for people with developmental disabilities, including those with cerebral palsy and intellectual disability, and their friends, families and loved ones.

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Resources

CDG Family Network

    4 Wryan Road
    Derry, NH 03038
    CDG Logo The Congenital Disorders of Glycosylation (CDGS) Family Network, Inc. USA, founded in 1996, is a nonprofit organization founded by parents seeking information and support for CDG Syndromes. The CDGS Family Network, Inc. organizes annual meetings of families, keeps an up to date library of medical literature and publishes a quarterly newsletter.

    Phone: (603) 434-8822
    Fax: (603) 434-8822
    URL: http://www.emu.lu.se/cdg/indexeng.shtml
    Updated: 08/23/2001